Thursday, April 12, 2018

Stricken


As I recline on the couch, Dr Phil or Ellen or local news droning on in the background, my anemic toes stare up at me. 10 white reminders that I am not myself, I am uprooted, I am in crisis. Tanned skin retreats from crisis. Pale is the colour required.
The mirror is not my friend. Two tired eyes stare back. They are gathering baggage. Heavy, dark bags and the strain of their weight is showing. Gone is the glow, the energy, the fire that has kept me fueled for all these years. In it’s place a gaping wound. A reminder of life’s fragility. A monthly parking pass to a hospital.
My mom - the fiercely independent fireball role model of my life - lies in a bed there, in that hospital. Defenseless, vulnerable and afraid. The regal swans whom she has loved, companions by the lake’s edge, swim by. They are looking for her. They gather and make terrible noise. They cannot believe she has left them. And neither can I.
All of us have been drowned. Whisked into a dark vast cavern by a force of nature. Unexpected, uncontrollable, a stroke takes lives and knocks them sideways. Like dominoes in a storm, we all fall down.
They say it’s the most common cause of long term disability in North America. They say it’s the leading cause of death. They say someone has a stroke every 40 seconds. Those are just statistics.

They don’t say you will lose sleep. There will be tears. You will lose your independence, your free will, your health, your happiness. Your life. They can’t possibly write down what this ‘common’ occurrence will do to us all. It’s too hideous. Too morbid. Too gritty. They will tell me this post is the same. Harsh, negative. Ugly. And they will be right.
Unthinkable decisions to be made, lawyers to be consulted, forms to fill, belongings to discard, depressing facilities to be toured like holiday spas. Social workers, wheelchairs, hospital food. The smell of that. The reality is overwhelming.
How do you put this one in a box? Get it all settled and move on?! How do you protect your heart and soul from something so engulfing. Where do you find yourself again? It doesn’t exist. Not for my mother, not for me. Nothing will be the same again for any of us. And all by a tiny build up of blood, coursing through a vein, up into a brain. A tiny biological malfunction that ripples outward like an atomic bomb.
The frivolity of our lives in the sun, the coarseness of sand between my toes fades in my mind. I feel guilty at even the thought of it. Instead I reflect the grey around me. The sky cries onto the windows and her tears hit the cold lake, mixing with the weary waters of a Canadian spring day.

There is only one thing that keeps us all going. Pushing through the sludge. It’s the hug from my nephew. Warm, soft, beautiful in it’s innocence. It’s the hand squeeze from JW at the end of a trying day.
The friends of my mom who bend and stretch and reach out, far beyond what I could have imagined. It’s a testament to the amazing character of Jan. My mother is so loved. And it is love that shines through. It has proven to be the only force stronger than tragedy.
It’s what allows my sister and I to find laughter somewhere in all of this. Just to know that we are here for each other, for our mother.
So for now it’s the currency I’m working with. It’s the boat in a hurricane. And I’m just trying to hold on.



Tuesday, January 9, 2018

Shiloh at 19 - A boy to a star


Many lifetimes ago, on a continent far far away on this day, I made my way through the clogged and humid streets, a melting Spider Man cake tucked up on the seat beside me…
I’m on my way home from the one bakery that makes these specialty cakes. It’s far and the traffic is crazy in the way only African streets can be. Stray goats, Police roadblocks, hawkers touting smoked fish and exercise equipment. But I had to do it. You love Spider Man. And Bob the Builder. Or maybe Bob the Builder was last year or the year before. I smile to myself imagining your beaming grin, the kind that lights your magical eyes from within when you see it. The pride in your eyes when you scan the crowd – your cousins, your friends, the kids from the compound. And then I chuckle, knowing you will be the least interested in eating a bite. My sweet sweet boy who needs no sweets. it’s your sixth birthday.  

I might have lost my patience in the busy streets. I might be silently cursing Spider Man or worried that his melting face will be unrecognizable by the time I reach home. I have no idea how much I will cherish this day. How I will physically ache for one more chance to light your birthday candles. To witness your outstanding beauty. To hear you whine or laugh or even cry. Just to be near your life force one more time.
I am oblivious to the cruel future, I am limited, human in my lack of understanding of this world. It is your last birthday on this earth.
Gramma H, Quinci, Wesley, Shiloh, Auntie Jaqui

Grampa and Shi

My precious boy

Flying planes!

Think i had more fun than him!

The Vespa girl and her cool crew

brotherly love

Shiloh the ladies man

Still the ladies man

My little ham


Shiloh and his favourite dog Bob

Kristyn and Shi

That unmatched smile!!!!!!!

Hamming it up

Mother and son


Today I cannot imagine the 19th birthday you will never celebrate. There were no more cakes, no more parties, no bicycles or scooters. There was crushing pain. Emptiness where there had been laughter. Just void.
And now, so many lifetimes away, in a place under the stars, I celebrate only your ageless spirit. I can only walk the beaches and feel the sensory celebration of you. The roar of the ocean waves against the unyielding rocks at shore – that is your roar. The tiniest of delicate seashells that cushion my feet as I walk – these hold the whispers of your ancient soul. 

You were here with us as a child. You live forever in our memories, but you are so much more. Beyond the limits of our clumsy human form, you soar above in the shooting stars and today that is what I have to celebrate.
Shiloh Devon Nii Kpakpo Mingle January 9, 1999 – June 21, 2005